It has been a very long time since my last post, but I’ve had a ton of stuff going on.
The major thing that has affected my life is the new diagnosis of my daughter, Erin. She has been diagnosed with Fibrodisplasia Ossificans Progressiva, or FOP. The short story is that FOP is a genetic condition that turns muscle and soft tissue into bone. It is a progressive disease, so it gets worse over time, so we get to slowly watch our daughter turn into a statue. We have another blog going about this issue at www.cureerinkate.com.
We’ve started several fundraisers to help with the medical bills (there’s alot of stuff that insurance doesn’t cover when you have a rare genetic disease). Alot of free time has been spent on the fundraisers, doctors visits, and general family stuff.
Because of all the stuff going on, we decided it was time to take a family vacation. We realized that we need to do as much with Erin as we can while she’s still mobile. We went down to Astoria, Oregon (yes, where the Goonies was filmed) and stayed at a KOA campground in one of their cramped Kamping Kabins. It technically had internet access, but I literally had to raise my laptop above my head to get enough of a signal to check email. Good thing I queued up a lot of news and articles, so the site ran on autopilot for a while.
Of course we went to Canon Beach (also where The Goonies was filmed), and I even visited the famous “Goonie House”. I’ve been there before, and I played tour guide to several others who hadn’t been there.
On the way back up to Seattle we stayed at the Great Wolf Lodge, which is basically a frickin’ huge indoor waterpark with a hotel slapped around it. While there, I got a chance to actually meet Don (our latest kickass staff member) in person.
Right before we left on vacation, I had fiber internet installed, so I only had a day to play with it before I was whisked away to life without Internet. Since I’ve been back I’ve been doing a bunch of testing making sure it is stable enough to support all of my web servers.
While this other stuff was going on, we had finally gotten our crap together and files taxes for several years (don’t ask). When we got back from vacation, we had two new IRS checks in our mailbox… so it was time to take care of a lot of things we’ve been needing to do forever.
We got several large things for the house (that we hadn’t been able to afford), fixed our family car, paid off bills, bought new hardware (to support the OCMS server move), and of course we couldn’t resist the temptation to get a few toys that we’ve been denying ourselves.
There’s several little detail-y things here and there, but basically dealing with new installations and things that break.
That’s the overall gist. The past month or so has been so busy that I’m amazed that I have anything to return to. On a sad note, one of the OCMS staff members have left in the midst of all this drama, partially because I had to put some business aspects of OCMS on the backburner while all of this other stuff got sorted out. I really appreciate the support that everyone has shown during this time, especially for the current OCMS staff members that continue to stick it out with me.